It is 8:05 AM on Tuesday, I have been up on and off since 3AM. Feeding Henley then pumping trying to lay back down to only have Crosby start fussing and have to get up and console him. I think that I have slept 30 minutes since 6 when Henley woke up screaming for food an hour early. This is how the nights go. Up and down no chunk of time to sleep.
Normally I would have been at work already for an hour, now I am sitting in baby puke from last night and there is no organization to the bed or room. Jamin tries to get as much sleep as he gets up for work at 4:40. We are doing the best we can not living at home and having nurses come in every couple hours to check his vitals and wake him up. We are hoping to get out of here today or tomorrow. I cannot imagine living at home as a family of 4.
We have gotten a lesson in NG pumping because he will be coming home with an NG tube to eat through until his suck/swallow and stomach tolerate normal amounts of food. We have his carseat challenge today to make sure that he can spend 45 minutes in his carseat.
9:14AM Wednesday, I am sitting at home on my couch my two babies are in front of me in their rock n’ plays. We were discharged yesterday and left Children’s about 4PM. It has been a whirl wind and as excited as I am to be home I am also overwhelmed to be home with two babies and no nurses/doctors to check in on us. I will say that it is nice to allow my baby to sleep without getting vitals taken and poked.
We came home and fed both babies, Crosby has an NG tube which goes into his nose and down into his stomach. He eats wia a pump that puts breast mild down the tube at a certain rate. Our gold is to get to 47ml in 30 min, we have to work down in 15 minute increments until we reach goal. It is a pain in the butt because he has this tube that does not come out and we have to be careful not to pull it out. I really hope we get off of the pump soon. He is not strong enough to eat normally yet so we have to supplement with binky feeders and slow flow bottles until we get to some normal state.
The babies fell asleep last night and we ate dinner, my mom spent the night with us because Jamin had to go to work. Thank god she did. Crosby decided to cry from 9-1AM pretty constantly, we are not sure if it is gas pains or true pain or just super fussy baby. The nights are seriously hard and there is really no sleep to be talked about for me. I am not going to lie this is a lot harder than I thought and it is just beginning. I just think that twins and one with hurt surgery is a lot to handle and I am trying to do my best. Sometimes I just want to sleep all night though.
Enough complaining. We are home, Crosby is healthy and doing so well compared to others. We have a great home to live in that Jamin built with his own hands and we have a ton of family to help us. In the grand scheme things are great I just need to learn how to get through the nights.